Whether you’ve recently been diagnosed, or have been waiting for a diagnosis for some time, we’re here to help. We want to use our experience to help you and your family find out about the support that’s available so you can live as independently and as well as possible.
We know a lot of people living with muscle-wasting conditions. We also know what support is available through the NHS and what you’re entitled to.
If you’d like to speak to someone about a new diagnosis, please call our care and support team. They are great listeners, and if they can't help you they usually know who can. Our care and support team aren’t trained counsellors or doctors.